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Hi Jhwkbabe1 ~ We are in a similar predicament. My husband has Parkinson's disease and I am his only Caregiver. I have looked into home health care but it's expensive out-of-pocket and only short-term with Medicare. For now, I am capable of caring for him full-time however as I get older, my situation will change. From what I understand, only Massachusetts and another State have compensation for Caregivers. I'm in Texas - nothing here! We do have a wonderful Meals-on-Wheels program that I use to help save on groceries. I wish there could be a LOUD voice from ALL of us in the country doing this so that special funding could be provided. We are saving the gigantic cost for nursing home care and providing better, higher quality, more personal care for our loved ones. Hugs to you and best wishes. RSuzyJ
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Please note, Medicaid pays for long term care. No out of pocket expensive. There are criteria's you do have to meet please look into it.
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My husband had a stroke 2yrs. ago. He lost his left side and is still recovering so I can not go back to work. Is there a way I can get paid to take care of him so we can afford to life a somewhat normal life?
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Contact your local Area Agency on Aging - each state has offices in each county or region. They can help you understand what's possible.

Some states pay family a small stipend to stay at home as care givers but with the economy these programs are probably few and far between. Also see if your spouse qualifies for any disability payments through his employer.

There is also a lot of discussion on this topic within the Finances section of Again Care.com. Best of luck!
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Thank you Everyone for your great comments. I hope that just by making society aware that so many of us are taking care of spouses full-time and many on fixed incomes, that there can be changes in the system, especially at a time when government seems to be looking for ways to spend money - often foolishly - and so many could be benefited saving the costs of nursing homes and more.
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taking care of a diabetic husband and a sister who has copd
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What are the states that do pay a caregiver to stay home with spouse
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I work fulltime,my wife needs 24/7 care,she has Medicaid and they will pay for a nursinghome,but,we want to stay together,so what help can I expect to get,if any,if I quit my job to stay at home to take care of her?
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What can I do, to get paid for having to be at home with my husband?
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My husband is on disability and I am a stay at home wife and mother. He was diagnosed with emphysema with copd and prostate cancer. I care for him and I have to be here in case of a breathing/passing out spell. I cannot take a risk of being gone for long periods of time and something happening. I refuse to allow my son to find him in any predicament. We need financial help to keep our heads above water. Please if anyone knows of any financial help whether paying me for caring for him or any financial help. Please let me know.
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I know that the state pa doesn't allow a spouse to care for another spouse and get paid for it. I was wondering if in the state of Pa that there is something that will pay for that as he is returning home in March and I would like to be home to care for him
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We also have an 8 yr old son that needs my husband I don't have anyone else to help take care of me and Gaven. He has to be taken to and from school, does all the grocery shopping, most of the cleaning that gets done. I am so disorganized right now its driving me in sane. Not that I have ever been organized but I should have no problem now. I just got sick and everything got behind an I have never caught up.
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Go through your local welfare dept. They have the information on how any relative can get paid to take care of a spouse, child, or parent at home. It isn't much and there are rules like income levels by case management but it is better than nothing.
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i am on disability from have kidney fail your and diagnosed with lung and hart and i am on kidney machine 3 times a week i was wanting to know if they would pay my wife to do the amazing job that she has done over the years all ready she gives up so much to this job of a care giver to me it is not easy for my wife 27 years to do this job as it kills her to know the only from this machine i am on 3 days a week some times 4 is to get a kidney transplant it would be nice if i could fined out more on this if any one can point me down the right road i would be thankful i have been on this machine long time and i just hate to see her give up so much and not get a pay check by the way i live in fl thanks so much have a grate day
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Not sure if you are still searching for answers - but contact an Elderlaw Attorney if interested in having family members get paid for Caregiving. The states that do approve of it require some form of a formal legal contract, money exchanged and records kept.
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My husband jus had brain surgery. He is goning to need care 24/7 i will have to quit my job. And that means losing my home. He does not get enought from ssi to pay every thing.How can i get the extra money i will need to keep my house??
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Carol, that is a very common question asking if you can be paid. Please note that majority of husbands/wives do not get paid for caring for their spouse, unless the spouse is financially able to pay from their own pocket. If a spouse can afford to pay you, the spouse might as well hire a certified trained caregiver… thus allowing you to keep a full-time job so that you can add to your own retirement.

If your spouse qualifies for Medicaid, the State might allow a trained Caregiver from an Agency to come in to help a couple hours a day. Also check to see if your State is one of those States that has a “Cash and Counseling” program to help you out. Note that each State has their own rules, regulations, and programs. Some have waiting lists.

Plus contact your local agency on aging for local programs that might be available to help you and your spouse, such as Case Management, Meals on Wheels, housing, care referrals, etc, ... go to the website link below.... click on your State.... now click on the city/county. https://www.agingcare.com/local/Area-Agency-on-Aging

And please come back to the forums if you have any Caregiving questions, we would be more than happy to share our experiences with you, and give you ideas on what to do.
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My husband is on disability due to a back injury he has server siatica and some days cant walk or walks with difficulty . I have not been able to work because if he has a a spell I need to be here to help him get around . Plus I have a 8 year old to take care of . Can I do something to get compensated for taking care of him ?
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Momma47, please read my post which is above your posting.
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My wife and I live in Arizona. She has sage 4 Breast Cancer that has metastasized to her bones. I need to stay home to help her and I am looking for some kind of financial compensation to do this.
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Please see FF's April posting about this. Very common question and the answer depends on the state that you live in and the financial situation as to whether you qualify for programs.
FreqFlyer: My advice hero from April 8
that is a very common question asking if you can be paid. Please note that majority of husbands/wives do not get paid for caring for their spouse, unless the spouse is financially able to pay from their own pocket. If a spouse can afford to pay you, the spouse might as well hire a certified trained caregiver… thus allowing you to keep a full-time job so that you can add to your own retirement.
If your spouse qualifies for Medicaid, the State might allow a trained Caregiver from an Agency to come in to help a couple hours a day. Also check to see if your State is one of those States that has a “Cash and Counseling” program to help you out. Note that each State has their own rules, regulations, and programs. Some have waiting lists.
Plus contact your local agency on aging for local programs that might be available to help you and your spouse, such as Case Management, Meals on Wheels, housing, care referrals, etc, ... go to the website link below.... click on your State.... now click on the city/county. https://www.agingcare.com/local/Area-Agency-on-Aging
And please come back to the forums if you have any Caregiving questions, we would be more than happy to share our experiences with you, and give you ideas on what to do.
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Does Connecticut have compensation for caregivers to remain home with there spouses?
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my husband has heart deases, he's on the list for a new heart, we pray every day, friends and I, he has a heard time breathing. he can't walk, can't do anything, he use to be a painter, now he feels less than a man to this day. I stell love him, no matter what, god be with all the disability people,
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my husband fell fractured his ankle requires a walker I work no to help him when he get home how can I get some assistance I have no pto time
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Very common question and the answer depends on the state that you live in and the financial situation as to whether you qualify for programs.
FreqFlyer: My advice hero from April 8, 2015
that is a very common question asking if you can be paid. Please note that majority of husbands/wives do not get paid for caring for their spouse, unless the spouse is financially able to pay from their own pocket. If a spouse can afford to pay you, the spouse might as well hire a certified trained caregiver… thus allowing you to keep a full-time job so that you can add to your own retirement.
If your spouse qualifies for Medicaid, the State might allow a trained Caregiver from an Agency to come in to help a couple hours a day. Also check to see if your State is one of those States that has a “Cash and Counseling” program to help you out. Note that each State has their own rules, regulations, and programs. Some have waiting lists.
Plus contact your local agency on aging for local programs that might be available to help you and your spouse, such as Case Management, Meals on Wheels, housing, care referrals, etc, ... go to the website link below.... click on your State.... now click on the city/county. https://www.agingcare.com/local/Area-Agency-on-Aging
And please come back to the forums if you have any Caregiving questions, we would be more than happy to share our experiences with you, and give you ideas on what to do.
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My husband is in his final stages of Parkinsonism MSA. I am still working but need to stay home with him, is there anywhere I can get health insurance for me?
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Can I get paid for taking care of my husband he had a stroke
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ejones51, there are three pages of answers to that question. Did any of the answers help you?
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my husband had a stroke last year and his right arm is not working and then he broke his arm now I need help
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What kind of help do you need Karentais - and knowing where you are located will get you better answers. Are you looking for financial help, respite help, caregiver assistance?
Here is answer regarding USA programs adapted from 2 years ago and including notes from FreqFlyer: My advice hero from April 8, 2015
Please note that majority of husbands/wives do not get paid for caring for their spouse, unless the spouse is financially able to pay from their own pocket. If a spouse can afford to pay you, the spouse might as well hire a certified trained caregiver… thus allowing you to keep a full-time job so that you can add to your own retirement.
If your spouse qualifies for Medicaid, the State might allow a trained Caregiver from an Agency to come in to help a couple hours a day. Also check to see if your State is one of those States that has a “Cash and Counseling” program to help you out. Note that each State has their own rules, regulations, and programs. Some have waiting lists. www.medicaid.gov has more info.
Plus contact your local agency on aging for local programs that might be available to help you and your spouse, such as Case Management, Meals on Wheels, housing, care referrals, etc, ... go to the website link below.... click on your State.... now click on the city/county. https://www.agingcare.com/local/Area-Agency-on-Aging
If your husband is a veteran, he may qualify for assistance. You can begin the process of applying at VA.gov.
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